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KCER:
KIDNEY COMMUNITY EMERGENCY RESPONSE COALITION
Patient
Assistance Response Team
Team
Leadership: Brenda
Dyson and Peter Traub
Goals:
Review and assess educational resources for patients in preparation
for emergencies/ disasters. Serve as central coordination system
for financial aid to patients during emergencies/disasters.
Accomplishments:
Identified the need for additional concrete tools for
patients immediately ahead of a disaster. Reviewed educational
material on disaster preparedness for patients. Recommended several
possible identifiers, including a laminated wallet card for patients
to carry with them at all times, identifying them as dialysis
patients and with basic medical information. Recommended the use
of lavender as the identifying color for kidney patients during
an emergency/disaster. Identified the needs and resources for
direct support to patients through monetary grants. Develop methods
for local dialysis facilities to collaborate with their emergency
management through Community Partner Resources.
Volunteer
for this team! If you are interested in becoming a member
of this Response Team, please read and sign the Patient
Assistance Team's Charter and either provide it to the Response
Team leadership or acknowlege that you understand the Team's activities
and your responsibilities as a volunteer. Next, join the Patient
Assistance Team Listserv to get notified of upcoming teleconferences
and meetings and other activities.
Lavender
Patient Identification Cards
Meeting
Minutes:
- August
16, 2007
- December
12, 2007
- February
12, 2008
- March
11, 2008
- April
8, 2008
- May
13, 2008
- July
8, 2008
- August
12, 2008
- September
9, 2008
- October
21, 2008
- November
18, 2008
- December
16, 2008
- January
13, 2009
- February
10, 2009
- March
11, 2009
- June
23,2009
- July
14, 2009
- August
13, 2009
- September
8, 2009
- December
17, 2009
- January
12, 2010
- February
9, 2010
Patient
Resources
Patients
in need of assistance should first contact their dialysis or transplant
provider, their local emergency
management office, or their local ESRD Network. Information for
all ESRD Networks can be found here.
Kidney Community
Emergency Preparedness and Response (www.kidney.org/help)
has essential information to help dialysis patients, transplant
recipients and kidney health care professionals before and during
emergencies.
The
toll-free Emergency Hotline for patients and providers is 888-33-KIDNEY
(888-335-4363).
Resources:
Resources
in Multiple Languages (see additional Spanish language
information below) *NEW/UPDATED*
Community
Partner Resources
Collaboration
between dialysis facilities and their local emergency management
agency isn't just a Condition for Coverage, it's a best practice
to ensure emergency management knows and understands the needs
of the kidney community in your area. You can use these resources
to conduct a disaster drill so that both dialysis providers and
emergency management officials are ready to respond in a disaster.
Patient
Hotlines & Information:
- DaVita:
800-400-8331
- Fresenius:
800-626-1297
- DCI:
866-424-1990
- DSI:
877-374-3375
- ARA:
888-880-6867
- RAI:
800-403-2530
- NKF:
888-33-KIDNEY (888-335-4363)
- Dialysis
Corporation of America 866-927-2107
- AKF:
866-300-2900
- FEMA:
800-621-FEMA (3362) or TTY 1-800-462-7585
- National
Emergency Family Registry and Locator System (NEFRLS): Register/Search:
1-800-588-9822 or https://asd.fema.gov/inter/nefrls/home.htm
- American
Red Cross "Safe and Well" website: www.redcross.org/metadata/safeandwell/safeandwell.html
En
Español
Las
necesidades y capacidades de cada persona son únicas, pero
cada persona puede adoptar medidas importantes para prepararse
para todo tipo de emergencias e implementar planes.
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